Healthcare

A Community Centered Approach to the Development of a Comparative Effectiveness Research Question

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A Community Centered Approach to the Development of a Comparative Effectiveness Research Question Bryan Gibson DPT, PhD Elisa Amador Ana Sanchez Birkhead PhD Nancy Allen APRN, PhD University of Utah Presented at the 11th Annual HSR/ PCOR Conference: Partnering for Better Health: Bringing Utah's Patient Voices to Research 2016
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  • 1. A Community Centered Approach to the Development of a Comparative Effectiveness Research Question Bryan Gibson, DPT, PhD Elisa Amador Ana Sanchez Birkhead, PhD Nancy Allen, APRN, PhD
  • 2. Background Comparative effectiveness research – the direct comparison of existing healthcare interventions to determine which works best for which patients and which pose the greatest benefits and harms Which treatment works best, for whom, under what circumstances
  • 3. PCORI – Pipeline to proposal Tier I - seed money to individuals and groups who have healthcare research ideas and who believe in the promise of patient-centered research-- community- building and engagement projects. Tier II -develop research capacity, create new partnerships, and build the infrastructure needed to conduct research.
  • 4. Tier 1- creation of CAB Creation of a community advisory board (CAB) U of U researchers community representatives community members
  • 5. Tier 1- creation of CAB several meetings : What is patient centered outcomes research ? What is comparative effectiveness research ? What are the specific goals of this project ?
  • 6. Development of potential questions CAB members/community members affected by type 2 diabetes first told their “Diabetes stories” Group reviewed each story to distill out the problems faced collaborative brainstorming session of potential solutions Based on interests/expertise focused on technology to support
  • 7. Community Survey Used table of problems - potential solutions to develop conjoint survey (marketing type survey to look at desired features) Survey completed by 135 community members on iPad delivered by community health workers
  • 8. Next steps Pilot testing of different technologies IPad with apps Activity monitor Continuous glucose monitor What works well? What is missing? What should be integrated together into a comprehensive intervention we can test?
  • 9. Lessons learned Meeting time- evenings only for community members, day for non profit representatives Education- continuous reorientation to what is PCOR/CER? Keeping people engaged- combine support meeting with research meeting Community organizations critical to success
  • 10. Acknolwedgements This project is supported by the patient centered oucomes research institute Tier I and Tier 2 funding (7737210)
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