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The Use of Personally Controlled Health Records as a Tool for Patient Participation

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The Use of Personally Controlled Health Records as a Tool for Patient Participation
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  The Use of Personally Controlled Health Records as a Tool for Patient Participation in Preemptive Disaster Management During Mass Gatherings. Christophe Robert Laurent* , Onze Lieve Vrouw Hospital Research Center, Aalst, Belgium., Wilrijk, Belgium Building: MECC Room: 0.9 Athens Date: 2010-11-29 04:45 PM – 06:15 PM Last modified: 2010-09-22  Abstract Background In mass events, the organization possesses databases containing the tickets sold, and the buyers. Most attendants to big manifestations today pay by electronic means for their participation. This implies that the organization has a database which contains names of attendants. During disaster scenarios and medical emergencies (e.g. a stadium collapse at soccer match, or a concert venue evacuation because of a bomb threat), and certainly mass casualty emergencies, identification and tracking (on the premises and later on the way to and in the hospitals) of the wounded and deceased is often a problem. Objective Most of the organizational efforts in this field are toward amelioration of what has to be done AFTER such a calamity happens. In practice, most of the attending people have to hang on to their concert ticket, or identifying concert bracelet or badge, many of which are also categorized as codes or numbers and listed in one or more databases, different from the first one. These different sets of data are almost never reciprocally linked in real time. Let alone providing relevant personal and or medical information when needed. Privacy matters are one of the reasons for this. The fact that the rescue effort is not coordinated with the event administration on that level is another. Methods The evolution of participatory medicine, also because of media attention and the success of reality shows, has led to a new state of mind in visitors, allowing for the organizing entity of such events to permit all or certain participants to create a temporary Personally Controlled Health Record (PCHR), existing only for the duration of the event. We have defined a pragmatic system in which people or patients are empowered to create their own PCHR before the event, which can be accessed by the Emergency Medical Personnel on site in a safe and efficient way, but only in situations that have been cleared as  justified in the agreement with the patient that has been made before. The data remain property of the visitor or patient, and are only accessed in case of need. They are stored  in the database of a Trusted Third Party, and are never and cannot accessed by the Event Organization. The Medical Emergency Teams only access the information in emergencies, and the patient or victim is always informed of the fact that the information has been accessed. Results The concept and process in which a bridge is made between what the visitor is inclined to deem of life saving importance, and how and when Emergency Services get a hold of this important information, is the object of this project. It seems logical that a person might be very willing to collaborate and contribute to the effort that may well save his or her life. Conclusion The fact that converging technologies and coordinated human effort can increase the patient outcome, safety and efficiency in situations where very often chaos is the only certainty, is a great confort and strong motivator for our team. "##$%&&'''()*+,-,.*/0-1.23*44(-1)&1-4&,.+*5($"$&)*+&)*+/060&$7$*3&8,*'&90/ 
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