Kit NEWSLETTER. Slough Services Guide - a new way to find out about services in Slough. In this edition

Kit NEWSLETTER Kite formally known as SNIPS January 2012 In this edition Slough Services Guide - a new way to find out about services in Slough, page 1 SPICE JETS: the special needs ice hockey team of
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Kit NEWSLETTER Kite formally known as SNIPS January 2012 In this edition Slough Services Guide - a new way to find out about services in Slough, page 1 SPICE JETS: the special needs ice hockey team of SPICE, page 2 Slough Borough Council re-launches the Disabled Children s Register, page 3 Transport information for children and young people, page 3 Slough Crossroads, page 4 Parvaaz project, page 5 Providing a United Service Here (PUSH), page 6 Special Voices, page 7 Manor Green children s respite unit, page 8 Short break statement, page 9 Reading half marathon - well run!, page 10 Benefits advice, page 10 Play day 2011 hits a spot with Slough residents!, page 11 Transition - from school and college to the world of work, page 11 About GO!, page 12 Transition planning, page 12 Priory school student poetry contest winner, page 13 Lives enhanced with direct payments - a parent s story, page 14 Early support - an update on where we are now?, page 16 Special kids in the UK, page 16 Welcome to the latest issue of the Kite newsletter. This newsletter aims to share information relevant to families with children and young people with special needs across Slough and relies on your contributions and feedback. We hope you will once again find the information contained in this issue interesting and useful. It would be helpful for us to this publication to you. If you have an address then please send it electronically to Slough Services Guide - a new way to find out about services in Slough Many of you already know that you can find out about services for you and your family in Slough by looking at the Slough Children and Young People s Directory. This directory has been updated and replaced by an improved version, the Slough Services Guide, which will be availavble from the beginning of November at slough.gov.uk. The services guide will have a new look and will be easier for you to use. Not only will you be able to find out about family services as you could before, you will be able to find more specific information for you as a parent of a disabled child. This will include information about transition to adulthood, respite services and links to national charities and support. The new services guide will be bigger than the previous directory as it includes other sections which contain information about services for adults, for youth and for the community. So if you have any questions about what services might be available to you when your disabled child becomes an adult, or if you want to find out what s available for your other teenagers then you will be able to find the information all in one place. Come and see the new Slough Services Guide demonstrated at the next SEN/LDD Forum on Tuesday, 31 January 2012 at the Chalvey Community Centre from 10am to 12.30pm. We would be pleased to hear what you think of the services guide. We re keen to find out if you find it easy to use or if you think there are services that aren t included or if there is anything else that we could include to help you further. If you have any comments contact Slough Family Information Service on or slough.gov.uk. 1 SPICE JETS - the special needs ice hockey team of SPICE One Step Beyond - going an extra step further than they ever dreamed about, SPICE kids have surpassed their own dreams and have taken their parents aspirations to a new level altogether! Special People on ICE have recently returned from a fantastic trip to Boston in the USA. What started out 12 months ago as a dream, for the SPICE Jets to take part in the annual Special Hockey International (SHI) tournament, became a reality thanks in part to the fantastic support from Aiming High. SPICE chair Ricci Hodgson commented, I heard about the SHI Boston tournament and made the mistake of telling a few members and parents. Within days, the word got out that SPICE Jets were taking part and so we had to make it happen. What then followed was a concerted effort to raise 25,000 in order to take 16 members and a parent or guardian over to Boston, MA. Some of our parents were simply fantastic with cake sales, sponsored skatathons and many bucket collections but we still needed some more money and that s where Aiming High stepped in to support us. So, how was the trip? Well it was simply fantastic - from the flight over to Boston - most of our members had never flown before so that was exciting and not a little daunting. The tournament took place in a fantastic ice rink with six ice pads. Over 1,000 athletes made up the 68 teams that took part mainly from the USA and Canada. SPICE Jets played four games and we won each game decisively! Though the aim of the tournament was to have fun and simply to take part, our members were so excited about winning! For our parents, we spent most of the event in tears! Seeing our SPICE members playing as a team, growing in confidence with every game was simply breathtaking to watch. New friendships were formed and we learnt some fantastic truths - our members do not have self-imposed limitations and they all exceeded our expectations. Our netminder was awarded with the Spirit of the Tournament for the way that he conducted himself on the ice, letting opposing team members have a chance of scoring a goal. If you find yourself at a loose end on a Sunday morning, come down to Absolutely Ice and check out the SPICE Jets who train every week from 11.15am to 12.30pm. If you would like to see a short video of the SPICE Jets trips to Boston check out our YouTube video on NG#p/a/u/0/iAP9LEkS2pg For more information on SPICE and SPICE Jets, please visit our website 2 SBC re-launches the Disabled Children s Register Do you remember completing a form with Surinder Mankoo to add your child s details to the Disabled Children s Register? Many of you did but that was a long time ago and much of the information is now out of date and there are lots of families with younger children who have never been included. We are relaunching this register to coincide with the launch of the Slough Services Guide. The purpose of the register is to capture information about all children and young people aged 0-25 years with disabilities or special educational needs in Slough. The information that you give us will be used anonymously to show the demand for services in Slough. We will use this information to help us to plan, monitor and develop appropriate services for disabled children and their families. Registering is voluntary but we would like to encourage as many of you as possible to register so that we can get as clear a picture as possible of the needs for services in Slough. To register you will be able to use the online form that is found on the Slough Services Guide. There is a simple registration process that we can help you with. As you are registering online, we will be able to use your contact details to keep you up-to-date with developments in services for disabled children and young people. This register will be officially launched at the SEN/LDD Forum on Tuesday, 31 January 2012 at the Chalvey Community Centre between 10am to 12.30pm. We will be able to answer all your questions then. Transport information for children and young people Are you a disabled parent or do you have a disabled child and can t use public transport? Then Out and About may be for you. Out and About can be used by disabled children and young people, their parents and siblings for trips anywhere within Slough if you have difficulty using public transport. Membership at 40 per annum ( 20 after October) is that of the child who then pays 2.25 per single journey. The parent, or the responsible adult as carer, travels free and if not initially at the venue can be picked up from home but otherwise is expected to be with the child at all times. Siblings may come as well for 50 pence per single journey but must be included on the original booking. Extra trips can be arranged to popular out of county locations at favourable fixed rates and details of which can be obtained from the Out and About office. For all enquiries and booking please ring on weekdays between 9.30 am and 1.00pm. Buses run from Monday to Saturday subject to driver s availability. 3 Slough Crossroads - the highlights Slough Crossroads has provided an impressive over 1,000 hours of respite support for young people with disabilities during the April and June holidays, thanks to funding from the Aiming High project. This has included: physical activities such as dragon-boating, visits to zoos, multi-activity centres, theme parks and more. We are pleased that we could provide support for over 50 young people in the last half term, taking them to Hop Family Park in Kent, Odds Farm in Wycombe and Camp Mohawk in Wargrave. There was plenty for them to do including amusement arcades, animal feeding, swimming and lots of playgrounds. During the summer, we ran another packed programme of activities including dragon-boating, theme parks and the seaside amongst others. We cater for all disabilities including learning, physical and mental, providing trained and experienced staff to facilitate the day trips. We also run clubs on Friday evenings during term time. We do an assessment of care needs of everyone we support so that we can support them as best we can, which we can do as soon as referral has been made to us. If there are any children in your family with any disabilities and you are interested in our activities during the holidays or term time, please contact us. You can call or 4 Parvaaz Project Parvaaz Project provides information, support and advice to families and carers of children and young adults with disabilities. We also provide comprehensive respite services and structured activities with 1:1 and 2:1 support, seven days a week. Our services include: 1:1 and 2:1 respite care Girls only group including arts and crafts Saturday sports club Saturday arts and crafts club Structured activities in small groups (Direct Payment clients only) A community drop-in session for carers and family members is run weekly and outreach service for our carers. Parvaaz Project also offers short breaks during all school holidays throughout the year to relieve carer s of their caring duties. These include structured daytime activities that are age appropriate for children and young people with special needs aged 6-25 years of age in order to offer respite to their families. For further details contact: Neeru Palhi Project Manager Gulshan Mughal Young People s Coordinator Parvaaz Project, The Annexe, Northampton Avenue, Slough SL1 3BP Tel: / Providing a United Service Here (PUSH) The core organisations, which have worked with Slough families over the last couple of years providing short breaks for children with a wide range of needs, have joined forces and formed PUSH a dedicated group of professionals. With the help of Slough Council for Voluntary Services, PUSH is jointly bidding for funding to continue their good work. Projects that the organisations have been involved in previously have included Dragon Boating, competing in an ice hockey tournament in Boston and lots and lots of fun across the school holidays. Days out have been made available to families with children with additional needs at the excellent sites such as Camp Mohawk and Thames Valley Adventure Play Ground. PUSH will keep pushing forward looking at how they can provide a service for the children and young people of Slough. The official launch of PUSH took place in the form of a fun day at Camp Mohawk on Saturday 4th June. Camp Mohawk were excellent hosts and children and young people from Crossroads, Parvaaz, Arbourvale School and Buzz Kidz celebrated the launch by having a fun sunny day, swimming, bouncing and some just chilling in the wide range of facilities at Camp Mohawk. 6 Special Voices - a special group for special parents Special Voices is a group of parents and carers set up in November 2008 initially to feedback your views to Slough Borough Council to improve and shape future services. Since then it has evolved into what we felt was needed locally and what parents and carers wanted. We are all parents or carers of children and young people who use local services, so we understand some of the challenges you face. We currently run coffee days, information days and stands, telephone and help, support, signposting, help with form filling and documents, fun family events, training opportunities for parent participation, opinion polls, focus groups plus lots more. We are always in need of parents and carers to volunteer to help us shape future services at the development and planning stage. Why not call us to find out more on how you can help? If you wish to be added to our members list and receive notification or reminders of all our events, give your views or experiences; then please telephone , or us at or look up our website Why not join us on Face Book: Special Voices or participate in our coffee drop-in and chat day? Special Voices would like to invite you to their informal coffee drop-in and chat day You can meet other parents in a relaxed atmosphere for friendship and support, information is always available, guest speakers on the latest topics, this is also a chance to have a voice in how future services are planned and developed. Together we can make a difference. Our next coffee days are: 27th January th February rd March 2012 Time: 9.30am-2.30pm Venue: Friends Meeting House Ragstone Road Slough SL1 2PX If you have any queries or would just like to speak to us, call or 7 Manor Green children s respite unit There is now a new respite unit at Maidenhead that is tailor-made for children with disabilities. Berkshire Healthcare s NHS Foundation Trust Children s Respite Unit is a purpose-built unit located on the Manor Green School site in Maidenhead. We provide a respite care service for children and their families who have severe learning disabilities and complex health needs. We take children from babies, right through to 18 years of age with a wide variety of conditions. The children are cared for by our team of qualified nurses and support workers who are specialised in caring for children with complex health needs. We offer day care, tea visits, overnight stays and in special circumstances homecare. Whilst the children are in respite, our aim is to provide a home from home environment: we have four bedrooms, a large lounge and dining room area, sensory room and children s kitchen and garden. The children can enjoy a range of activities from cooking, art and crafts, story and music time, water play, walks and trips out in the holidays. Knowing that the children are having fun in a safe, caring environment allows their parents or carers to take a well-deserved break, spend time with siblings or just enjoy some me time. As we are a specialised unit, we do have set-criteria regarding admissions to the unit and all children need to have a referral from their Children s Community Nurse. An assessment will then be undertaken to gauge the child s needs and their suitability for accessing the unit. If you would like more information about our unit and services, please contact Emma McKeever, Team leader on or or contact your Children s Community Nurse. 8 Slough short break statement Short Breaks are offered by the Slough Borough Council to support disabled children and young people and their families. From April 2011, all local authorities have a duty to provide short breaks and have the Short Break Services Statement published by October What is a Short break? A short break can be a few hours a day, activities out of school hours and for some children can include an overnight stay. The short break you choose will depend on your family s needs, the availability of the services and your eligibility to access the service. The breaks may happen at home, in a community setting, such as sports, leisure or youth facilities, a children s centre or extended school, in the home of an approved carer or in a residential setting. Purpose The purpose of the Short Break Service Statement is to set out the range of services available, eligibility criteria for those services and how the range is designed to meet the needs of parents, carers and disabled children and young people. Short Break Provision in Slough Slough Borough Council has divided access to short break services into three different categories with the aim to prioritise the needs of those who need the services more, and also make it easier to access short break services without the need for a social care assessment. Level 1 - Universal or mainstream services are opportunities for children and young people with disabilities to successfully access universal mainstream settings with or without additional support. Level 2 - Targeted Services are groups that have specialised in the provision of short breaks for children and young people with disabilities. Children and young people accessing these services can range from those having no assessment, to providers initial assessment or a Common Assessment Framework (CAF). Level 3 - Specialist services are designed for children and young people with complex levels of need and therefore require a social care and/or health assessment to refer to specialised short break opportunities. Individual Swimming Lessons for those with Additional Needs Learning to swim is a great way to learn an essential life skill let alone being fun and a great way to increase confidence in water. Being in the water can help children and young people with additional needs move freely in water whilst enjoying this fun filled sporting activity. Montem Leisure Centre offers individual specialist swimming lessons, specifically for children and young people with additional needs and these sessions are held by qualified instructors who will help the child gain confidence in the water. The lessons are offered at a discounted price of 9 for 30 minutes upon purchasing an options card which costs 3.90, prior to the very first lesson. For more information please call Conclusion The Short Break Programme originally facilitated through Aiming High Funding has enhanced the short break services now available in the borough. Early Intervention Grant funding is now supporting the ongoing work of developing the Short Break Services in Slough. It is hoped that these increased levels of support will continue to support disabled children to remain being cared for within their families and to live within their local communities. The hardcopy format of summarised Short Break Service Statement is now available, alternatively you may read the whole statement at or contact Rosemary Gambles, Assistant Manager LDD Service: to receive a copy. For more information about organisations that provide activities for Level 1 and 2 contact the Family Information Service on or For Level 3 talk to the professionals involved with your child. 9 Reading half marathon - well run! Miles and miles of congratulations to Jackie Wright who took part in the Reading and Windsor (half) Marathons. She took to the streets for the gruelling 13 miles with her determination and limitless adrenalin to raise money for Camp Mohawk. Here s her story in her own words! Those of you who know me well will know I started running in August 2008 and at that time could probably manage to jog about a mile. I joined a gym and built up my stamina so managed to run the Reading half marathon in March 2009 and again in March I am a slow runner and in an attempt to speed up I have also run a few 10k races with my fastest being 54 minutes. I found it difficult to speed up and needed some greater incentive so decided to raise money for Camp Mohawk to help them to purchase a climbing boulder. Camp Mohawk is a charity which provides fantastic opportunities for children with LDD to play, socialise and learn in a secure and caring environment. As many of you will know, I am passionate about impr
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